Thursday, 4 January 2024

End Game.

I'm still here, but think I'm reaching the end of the line with this terminal cervical cancer lark.
I feel sick a lot of the time. The anti nausea pills do help, but they have unpleasant side effects such as bunging me up. Then I have to counteract them with laxatives with the opposite effect, so daren't go anywhere due to recent "accidents" The brachytherapy caused most of the problems down below. I wish I hadn't had it, in hindsight or any treatment seeing as none of it worked. 
 I'm eating a bit better which helps my guts I suppose.
The soreness and discomfort is getting worse so most probably have another UTI. Will find out next week when I go for diabetes review, with wee sample in hand ( well, in the bottle rather!)

Still, I've made past Christmas 23 and into 2024, so mustn't complain. My aim is to make it to my 82nd on Feb 7th. 
Gynae man ringing me from Addenbrookes on 12th to see if I'm still around. No real point with having more scans, as nothing they can do and I dread the journey anyway.
I'll keep cracking sick jokes, like where is a Dr Shipman type when you need him!  That was bad taste, but that's me. I'm too chicken to do it myself as I'd cock it up anyway,
 most likely! 

See you folks x

Saturday, 11 November 2023

To an Unknown Soldier.

A prose poem I'm working on about WW1. All comments welcome.


I couldn't feel the pain, hear the blasts, endure the bloodiness of it all, or see the mental scars that you carried while you still lived, as you witnessed friends and comrades dying around you.
Because I wasn't there.


I didn't see the carnage, feel the gas blister my lungs and scar my body.
I did not experience the sickening, never-ending mud, slowly rotting my feet in sodden boots, neither did I suffer that nauseating fear in my gut, or see those shells that showered around you.
Because I wasn't there.


I never saw the damage, the aftermath of that war.
The hardship of starting over - the poverty conflict creates.  The Spanish 'flu that killed more than the war itself.  The difficulty of carrying on or ever feeling normal again.
Because I wasn't there.


I only know the precious freedom,
we take for granted now -  at least in this country.  I hope we always have it .
Even though it all happened again, I thank you for your sacrifice in the Great War. Yes, the one that was supposed to end all wars.

This is why I wear my poppy with pride.


Because  YOU WERE there.

Tuesday, 15 August 2023

Results

I was sent my MRI results from Addenbrookes, via my MyChart app as it seems nobody was available to ring me and explain the results in layman's terms. The medical jargon was hard to understand. 
It seems my cervical cancer has spread lower down in my cervix etc but not yet in my bladder or rectum. Nice to know. Yippee, but still terminal  though.
Also had a routine blood test and GP phoned with results. I'm dehydrated, slightly anaemic with dodgy kidney function. 
GP didn't seem to think there was a connection between my cancer and some of the results. Really?  Don't they read your medical history or know what side effects brachytherapy can do to one's bowels? Constant diarrhoea and nausea, despite drinking plenty of water. 
 No wonder I'm dehydrated, plus anaemia possibly due to losing small amounts of blood. You would think they'd join the dots. Still, what do I know. I'm just a stupid old woman.

Saturday, 5 August 2023

Waiting Game.

Still waiting for MRI results from 18th July. My consultant is away, presumably on holiday. He usually let me know scan results within a week. His secretary said she would try and get another doctor to ring me, but so far nothing. 
All I want to know if cancer has spread to other organs. Not too much to ask is it? I know it can't be cured and I've come to terms with that.
Oh well..

Monday, 10 July 2023

Yes, still here!

Well, I've made it past the few months to a year prognosis of my terminal cervical cancer, not that anyone ever reads this blog. I still look much too healthy for some people and can still function reasonably well! 
Have an MRI scan next Tuesday to see what's going on down there. Definitely something, as I'm getting more bloated and my innards are more erratic, though not in any great pain, more discomfort really.
 Not sure if extra weight I've put on is the tumour expanding or just me pigging out. Difficult to say as always had a bit of a belly, but scan will reveal all. I feel this might be the beginning of the end for me and its a bit scary to think how bad I might get if cancer has spread elswhere. I suspect it has.
On a lighter note I had a lovely week in Cornwall recently with friends. Tiring, as we packed a lot in, visiting Padstow, Land's End and the Eden Project, Fowey and lots of pretty places in between.  Also a lovely pub in Lostwithiel where we stayed. Had a few Cornish ciders and a great steak meal there. Local fish n chip shop and Chinese takeaway were great too. Another item crossed off my "things to do before I croak" bucket list, as never been to Cornwall.
Paid deposit for my solo trip to Isle of Man in October. Whether I make it or not remains to be seen. I will pay balance depending on scan results. I'll only lose £125 if I have to cancel. 

I've just realised I've been living with this disease since June 2021 though reckon it's probably a lot longer, as I had bloating symptoms for years, but various ultrasounds never showed up any concerns, so I just assumed it was IBS. Maybe if it had been investigated more at the start with an internal...!
Perhaps my 2 covid jabs triggered cancer that was already there, when I started bleeding? 
 I will never know.

Monday, 10 October 2022

Holiday in Tuscany

My holiday in Tuscany with my good friends was wonderful. As a first time flyer, I wasn't nervous at all and thoroughly enjoyed the flight and my lugholes didn't suffer too much!
We visited some beautiful cities, including Pisa, with its famous Leaning tower, Cathedral and Baptistry. It really has the "Wow" factor as you pass through that archway.

I enjoyed Florence with all its beautiful architecture and statues. Unfortunately the queues to the Accademia Gallery where the beautiful marble statue of David now stands  were too long, but I took a pic of the fine replica, where the original once stood. 
The highlight of the week was the wine tasting on Thursday  accompanied by some tasty treats.
The last night was great too with a performance by 3 tenors and a pianist at the beautiful venue in the Spa park in Montecatini Terme where our hotel was situated.
Lovely hotel, nice staff and though I wasn't keen on some of the food, I coped OK - made up for it with the delicious ice creams, pastries and savouries  when we were out and about! 

We met some lovely people there and whatever time I have left I will remember this fantastic holiday forever.
Heathrow airport was a bit of a nightmare though!

Sunday, 11 September 2022

Re. phone consultation.

Regarding my phone consultation with a doctor I've never actually seen, it appears there is no more treatment available for my cervical cancer. Palliative care team were supposed to have contacted me but I've not heard yet. I feel reasonably well still, so not that bothered. My new prognosis is from few months, to 1 to 2 years,  but outcome unpredictable. Nice to know anyway. Hopefully I'll make my holiday to Italy. My friends can always take my ashes with them if not -   and say I actually went!

I find dark, gallows type humour helps, so I'll probably publish more of it, as I get nearer the clog popping experience.

Wednesday, 7 September 2022

My Cancer Prognosis

 It's a while since I posted on here, not that anyone reads it very often.

I was diagnosed with the big C, (cervical cancer) last summer and after various tests at my local hospital I was referred to Addenbrookes in Cambridge for light chemo, radiotherapy and also brachytherapy. After initial promising results, it unfortunately came back aggressively and my condition is now terminal.

A big, up to 18 hour op, was deemed out of the question due to my age. They may be able to delay the inevitable with treatment and I'm waiting to speak to consultant on Friday to discuss options.

I'm feeling quite well considering and intend to enjoy what time I have left, so Italy here I come next month! I might even get my bum pinched!

I bought some new anti-wrinke firming face cream the other day. Hopefully, by the time I pop my clogs, I'll look "dead" good in my coffin!

 


Sunday, 26 April 2020

To Mow or not to Mow (with apologies to Will Shakespeare)

To mow or not to mow the back lawn? That is the question
Whether 'tis nobler in the mind to suffer the slings and arrows of outrageous backache.
Or  take a sea of paracetamol and just get on with it?
Or by opposing them,  just work through the pain? 


Thursday, 23 April 2020

St George's Day

It's St George's day, today
But at home we have to stay.
No celebrations at the pub. 
Or visit restaurants for grub.

We may think its such a drag
But we still can fly the flag.
Let us show that we are strong.
As this lockdown could be long.

We are British,  have great resilience
We love our NHS in all their brilliance.

Working hard to keep us well
In conditions of pure hell.
We may be bored and scream and shout
But unless you need to, don't go out.

Read a book or watch the telly. 
Bake a cake or make some jelly.
Play some music, text a friend.
To stop you going round the bend!

The sun is shining, such a boon.
Birds are singing, nesting soon.
The seasons pass, then come once more.
Nature's timeless beauty at our door.

We can still stroll, go for a jog
Or walk to exercise the dog.
Keep our distance on that mile. 
And don't forget to wear a smile! 😁

















Thursday, 2 April 2020

Temptation

I have really been struggling with a certain temptation the last few days and the urge to do this thing is now overwhelming me. 
Giving in to this particular temptation is not really me at all, but I will have to learn to live with it. The lockdown is really no excuse for what I am about to do, but I feel I must unashamedly reveal this urge to you all. I fear it will be a really shocking revelation to all who know me well.  In the past I have always been able to control this urge and live quite happily not actually doing it - but not anymore.

Right  here goes...





I'm going to iron my underwear, socks and pyjamas!

Wednesday, 1 April 2020

Untitled

She was waiting for him in eager anticipation, lying  writhing on their king size bed.
"I need you" ,she gasped. "Please give it to me now?" she pleaded. "I need it so badly".
She heard him softly growl, his voice breathless  "I'm here now woman and I'm going to give you what you're craving. I hate seeing you frustrated this way, when I know you are longing for me to sastify you. I know exactly what you crave"
She looked at him lovingly and as her eyes strayed downwards she could see the bulge in his trousers.
"Oh, my darling  please give me your all, as hard as you like,  make me scream.
 I don't care if it hurts even,  just do it to me now"

"Right woman" he said masterfully " just roll over on your stomach and bend over the side of the bed and I'll give you the best you've ever had. If it hurts, too bad as you really have been asking for it"

She shrieked with relief and delight 

as he pulled the large tube of muscle rub from his trouser pocket and proceeded to rub it in her aching back.

Tuesday, 31 March 2020

EDDIE


EDDIE.




Edward Ashton knew he wasn’t the most good looking man in the world - in fact he assumed he was rather ugly. Hadn’t his mother always told him so? His henpecked father had to agree, for fear of reprisals from his waspish-tongued wife.

“You’ll never find a girl friend looking the way you do” his mother had said sneeringly, on more than one occasion, during his troubled boyhood and teenage years. He had no siblings to compare his looks to, which he supposed was a blessing. His mother was very attractive and knew it and his father was quite a handsome man - if somewhat lacking a backbone! Eddie got the distinct impression he was a terrible disappointment and also an embarrassment to them. His nose was too big, his mother had constantly pointed out and being only five foot 6 inches tall and rather solidly built, he lacked any self confidence whatsoever and never bothered talking to any girls, let alone ask one out!

“You were such a beautiful baby too” she’d sighed, when glancing at a silver-framed snapshot of him sporting a blue romper suit, with white smocking. Eddie had grimaced and thought she would probably have taken him back for a refund if it were at all possible!

It was only years later that he discovered he was adopted when applying for a job. He mother had suggested, not very tactfully, that with his distinct lack of brains, he could probably get a job as a refuse collector with the local council and she’d reluctantly had to root out his birth certificate. The news came as quite a relief that he was not actually biologically related to his parents. He hadn’t excelled at any subjects at school and found reading and writing difficult, but nobody had realised he was dyslexic.

The condition was not really recognised in those days and he was branded the class “dunce” by the teachers and bullied at school for being “fat” and “thick“ At home he’d spent most of his free hours doodling and painting on bits of paper to while away the time. His mother had no time for home cooking, as she was always busy taking over in some project or another at the local women’s guild, so Eddie tended to exist on fish and chips and make do meals, after his father had died unexpectedly. The newly extra wealthy widow Ashton dined most evenings in classy restaurants with her snooty friends.

Eddie was thirty -five now and had been a bin man for fifteen years and didn’t mind it at all. There were even certain perks to the job occasionally; some of the things people threw away were still quite useful he decided and his little bed-sit was a credit to that. He had moved into a housing association apartment after his mother had sold up and moved to Spain for the good life with her new man friend.

One time, Eddie had found a decent coffee table and some shabby, but otherwise intact picture frames dumped in one of the bins. He found a good use for the latter, by framing some of his own paintings in them. He bought some mounts from the local art shop and revarnished the old wooden frames. His small lounge/bedroom was starting to resemble a mini art gallery. If only he had a like-minded someone to share his passion with.




Every Saturday, Eddie would browse the local market to buy fresh vegetables and produce. Since he moved into his bed-sit he’d gone on a diet and lost two stones. He was surprised at the difference it made. His old clothes were hanging on him, so he treated himself to a whole new, trendier wardrobe.

He’d noticed there seemed to be several new stalls in situ and one in particular caught his eye. It specialised in art, selling original oils and watercolours, by an artist called Vanessa Merry. What a lovely name, thought Eddie, who casually wondered if she lived up to it! He was sure he’d heard of her before, she’d probably held an exhibition at the local library or something. A man in his late thirties appeared to be managing the stall this weekend and as Eddie was studying all the art work admiringly, they got into a conversation.

“ Hi, I’m David Merry” the man volunteered. “Vanessa and myself both paint” he added “though I think her work is far superior to mine; she seems to have a natural gift of catching the light, something I can never quite achieve”

“Yes, they are beautiful,” agreed Eddie, as he studied a watercolour of the town bridge over the river. “Is she here today? I’d like to meet her, as I do a bit of painting myself - er, just as a hobby though, I‘m not very good”

“Afraid not, she had a hip operation two months ago, but hopes to be back on the stall next week, but at least she’s had time to concentrate on her latest art projects” said David, with a broad smile. “Why don’t you bring a few of your pictures along for her to look at. She has quite a critical eye and also runs art classes with a colleague at the local college, twice a week”

“I might just do that” replied Eddie, who’d never let anyone look at his pictures before. “Right now though, I’d like to buy this local watercolour please”

He hadn’t a clue where he’d hang it, but felt compelled to purchase it, as he’d fallen in love with its soft, pastel shades and the way the sunlight played on the water. He thought Dave was a really great bloke and wondered what his wife Vanessa was like and looked forward to meeting this very artistic lady next Saturday. When he got home he surveyed his own paintings with a very critical eye and took down a few of what he deemed were his best efforts, leaving plenty of space for his new purchase. He carefully packed them in a hold-all and put them in the tiny lobby, ready to take next weekend.


Eddie was a bag of nerves that Saturday morning; armed with his paintings, he set off to meet the artist. He couldn’t see any one at first that he thought might be her, but as he got nearer the art stall, he saw a very tiny young woman, who couldn’t have been more than 4ft tall. She was leaning on a specially adapted walking stick and chatting earnestly to David Merry. Eddie thought how pretty she was as he got nearer. She had dark blonde hair and he noticed immediately that her smiling eyes were a pretty hazel.

“Glad you remembered to come” said Dave “ this is Vanessa - did you bring your pictures, by the way?” Eddie shook hands with Vanessa and nodded - and fell in love instantly, with her engaging smile.





“Pleased to meet you ” he said, blushing slightly. “I bought one of your paintings last week and David said you’d give some of mine the once over” He took three pictures from his bag and Vanessa studied each one in turn.

“These are really quite good” she said. “I can see you have a natural ability Eddie, where did you study art?”

“Nowhere” he replied “Though I’ve always enjoyed painting, sort of taught myself I suppose”

“Why don’t you enrol at the college for my art classes, if you’re free one evening a week? I’m sure my colleague would love to meet you”

Eddie smiled inwardly; he was always free, wasn’t he? - and what had he got to lose? "Thanks, I’d like to - I hope you’re recovering well from your hip operation, by the way” he replied.

“Thanks, getting there” Vanessa replied. I’ve had one op already, it’s one of the complications of being a very small person. We can sometimes have problems with our joints, it can be very painful, but at least it doesn’t stop me painting” she added, cheerfully.

When he got home Eddie decided he would definitely enrol for the new art classes starting in the autumn, as he really wanted to learn more and apart from that he wanted to see Vanessa again. What a pity she was married, he thought.

A few weeks later it was the day of the first art class and Eddie was a bag of nerves, as he approached the entrance to the college that evening, but he soon realised he needn’t have worried, when he got a warm welcome from Vanessa and her colleague Margaret who was a pleasant lady in her early fifties. The other students were friendly too and soon complimented Eddie on his fine work. After a few weeks he grew in confidence and decided to enrol in adult literacy classes as well, as he longed to be able to read and write properly, something that had always been a sense of embarrassment to him in his youth. He discussed it with Vanessa, whom he’d grown very close to and she encouraged him to “go for it”

Months later after everyone had gone home, Vanessa asked Eddie to stay for a chat. “Let’s go for a drink” she said “There’s something I want to discuss with you”

Eddie was quite intrigued as they entered “The Red Rose” pub in the high street. It turned out that Vanessa was so impressed with Eddie’s art work she wanted to sell them on her stall and asked him to go into partnership with her, in running it.

“Well of course I’d love to, but what about your husband Dave” asked Eddie, wide eyed in amazement. “Won’t he mind?”

“Husband? - Dave’s not my husband, silly!” laughed Vanessa “He’s my older brother - he only helps out on the stall now and again”

Eddie leant forward and clasped her small hands in his “ Then I think we’ll make a great team” he said.

She responded by putting her arms around him and giving him a lovely smacker on his lips.





“Yes and in more ways than one - I’ve been dying to kiss you for ages! I love you Eddie Ashton - will you marry me?” Everyone within earshot in the pub whistled and cheered.


Well it was a leap year after all!




Friday, 27 March 2020

Espana Phohibida!

In 2020, I was off to sunny Spain 
Viva Espana
But I never did get on the ruddy plane
Viva Espana
I didn't get suntanned on the beach
Viva Espana
All was closed and totally out of reach.
Viva Espana
But at least I'm well and still alive
Viva Espana
Love to you. Long may we all survive
Viva Espana


Tuesday, 4 February 2020

Truth Hurts

When a beloved partner dies suddenly, at least you can console yourself that they loved you and you are glad of the good times and the last holidays etc you spent together.

Then completely by chance you find out something about them that completely shatters the memories. You think that the whole relationship was built on lies and you cannot get past the awful truth, you discovered about the one you love. I wish you were here still, so that I could ask you why you turned out to be a lying, cheating scumbag. You were often so judgemental about other people's lives - what a hypocrite you were!  Was it just the two I now know about or were there more?  I hope they were worth it Paul. No wonder your heart packed up. I thought you really loved me. How naive was I not to see the signs, that are all so obvious to me now?  I'm such a dumb blonde.

You never really know anybody it seems...

Friday, 6 December 2019

Feeling Better

I'm glad to say I'm feeling a lot better since my last post. The virus has almost gone and hopefully won't come back again. 

Meeting my friend in town for a coffee. Just wish it wasn't raining, as I much prefer the weather cold and crisp.

Will put little Xmas tree up soon, though still missing part of the stand, so will have to stuff it in a heavy flower pot like I did last year.

Quite windy out. Let's hope umbrella stays the right way up!

Friday, 4 October 2019

Friday

Still in chronic pain at night, with this awful aching in my upper body, waking  every two hours, so no decent night's sleep for over 2 months now. The pain is just about bearable during the day when I'm moving about. Ibuprofen helps a bit.  GP has referred me to a rheumatologist, so at least some progress. Just waiting for an appointment now. Hope it won't be too long, so that I can get a proper diagnosis with appropriate treatment.

I've also applied to the council to have a walk in shower fitted, so on waiting list for that. The bath is getting difficult to get in  to use the overhead shower.

It's surprising how many fairly young people are suffering with various forms of arthritis. I'm on a facebook support group and so many of them are young mums. I suppose I am lucky that I was fit enough when my children were young.

This latest flare up started with no warning though and doesn't seem to be easing anytime soon,  plus I have a permanently sore throat and flu like feeling with it. Very weird. No antibiotics offered so presumably GP thinks its viral.

Of course I realise there are people much worse off than me, with chronic, incurable illnesses. I just need to know what I'm dealing with, so I can come to terms with it. I don't want to spend what time I have left in such awful pain and sleeplessness.

I'm finding it very hard to keep positive at the moment.

Thursday, 3 October 2019

Autumn Once More

Seeing as it's National Poetry Day today, here is one of my old ones with an added last verse.

AUTUMN ONCE MORE

Cool and crisp is the air today,
Autumnal aromas on the breeze.
Shrubs of evergreen, all blending
with gold-flecked broad-leaf trees.

Berry-bright brown hedgerows,
a precious feast for birds to share.
Apples waiting to be harvested,
so tempting hanging there.

Cold spells will change the colours,
to Autumn glory unsurpassed.
Giving that display we love
and remember from the past.

Soon the earth will be a carpet
of russet, red and gold.
when trees shed lacy foliage
as they have, since days of old.

As Autumn heralds in the winter
with those mists and frosty morns
Time for rainbows after showers,
fire-red skies at break of dawn.

Saturday, 21 September 2019

Saturday

I don't seem to be any nearer in finding out what is wrong with me, as my latest blood tests came back as normal according to the receptionist when I phoned the other day.

I feel no better and  wake every hour or so in the night in such awful pain in my upper body and nothing is helping much. It has been going on for over 6 weeks now.  I have another appointment with GP on Monday, though expect I'll be fobbed off with more pills. I'm finding it hard to get showered and dressed in the mornings. Trying to tie my long hair up with useless painful hands and arms is a nightmare, so think I will have to have it cut short.

I can really understand now why people in chronic pain wish to end their lives. Nobody should be expected to suffer and not have that choice. Let's just hope my pain is not going to be permanent then and the docs will be able to get to the cause and treat it. Not having a proper diagnosis is so frustrating.

I'm not one to give up easily and have always been a strong person, but it's getting to the stage when enough is enough.

I'm not prepared to live the rest of my life like this, if there is nothing to be done.

There,  I've said it.